Since November is National Diabetes Awareness Month, I wanted to raise awareness by sharing people’s stories and sharing about different topics within the diabetes realm. All this month, I will be posting interviews I did with a few people and sharing other topics within the topic across all my social media platforms. Whenever I got with my husband, he added me to a facebook group called Diabuddies Support Group . On the group, people can talk about their struggles and day to day life on the group. Even if you’re not diabetic yourself, but have a family member that is diabetic, you’re still more than welcome to be part of the group. I’ve made some really awesome friends within the group, and some were awesome enough to let me ask them some questions specifically for this and they were excited that I’m doing this. So today I will be sharing Adam’s story. I asked him some questions about his daily life and what other things he goes through. So keep on reading…
What type of diabetes do you have?
Adam: LADA. Adult onset type 1 – It is a disorder in which, despite the presence of islet antibodies at diagnosis of diabetes, the progression of autoimmune β-cell failure is slow. LADA patients are therefore not insulin requiring, at least during the first 6 months after diagnosis of diabetes. Among patients with phenotypic type 2 diabetes, LADA occurs in 10% of individuals older than 35 years and in 25% below that age. Prospective studies of β-cell function show that LADA patients with multiple islet antibodies develop β-cell failure within 5 years, whereas those with only GAD antibodies (GADAs) or only islet cell antibodies (ICAs) mostly develop β-cell failure after 5 years. Even though it may take up to 12 years until β-cell failure occurs in some patients, impairments in the β-cell response to intravenous glucose and glucagon can be detected at diagnosis of diabetes. Consequently, LADA is not a latent disease; therefore, autoimmune diabetes in adults with slowly progressive β-cell failure might be a more adequate concept. In agreement with proved impaired β-cell function at diagnosis of diabetes, insulin is the treatment of choice.
How long have you had diabetes?
A: 17 years
How did you manage, growing up?
A: I was dx as an adult.
Did you hide your diabetes?
Never, but I don’t bring it up too often either off the online communities.
What was hardest for you and your family — emotionally?
A: Since I was dx as an adult, it didn’t really affect my family much. It was an adjustment for my wife as far as highs and lows and changes I made in eating. Or financially? We’ve been pretty lucky with good insurance.
What treatment do you use to treat your diabetes?
A: Insulin pump and continuous glucose monitoring system.
How often do you have to test your glucose levels?
A: I was 6-8 times daily. Now 1-2 with the new Dexcom G6
Do you use an insulin pump or injections/pens?
What kind of insulin do you take?
A: Fast acting only in pump. Novolog
What insulins have you had throughout your diabetic career?
A:I’ve used Lantus and Novolog.
How well do you think you manage your diabetes?
A: I do a good job.
Can you recognize the symptoms of a low/high blood sugar?
A: Always with highs. Usually with lows but only when awake.
What symptoms do you get, and how often?
A: I get very thirsty and crabby when high. When low it’s hard to concentrate and sometimes hungry.
What do you eat for breakfast/lunch/dinner?
A: I eat all kinds of things. It varies.
Do you vary your insulin dose if you eat something that is not really good for you?
A: absolutely. The higher the carbs more insulin as well as fat and protein play a part.
Do you eat snacks or drink in between meals?
A: Yes, sometimes and only drink diet.
Do you eat vegetables and drink lots of water?
A: yes to both
Do you ever skip meals?
Do you find the diet restrictive?
A: Sometimes, yes. I miss being able to eat anything anytime.
Do you get annoyed when people ask if you should be eating a certain food?
A: no one really says that to me.
Do you do anything else to manage diabetes better?
A: exercise daily
What is the hardest part of being diabetic?
A: Restricting what I eat.
And the best part?
A: Forced me to eat healthier and meet great diabuddies
Does your diabetes cause you any other problems?
A: Depression at times.
What would you like a non-diabetic to know about having diabetes?
A: So many other things than food affect our sugars
What would you tell someone who has just been diagnosed with diabetes?
A: take it one day at a time and get a cgm ASAP
Who do you get support from?
A: Wife, diabuddies
Who treats you?
A: Endocrinologist, they are doctors can help you manage your diabetes by prescribing insulin and/or medications, offering diet plans and helping you to keep a close watch on your blood glucose levels.
So I would love to thank Adam for being a part of my series on here this month, and I have many other stories to tell on here, so come back on Monday for an all new interview.